Sunday, January 3, 2016

Awwww, poor sweetie (go to the link posted in this paragraph). I know all too well - from experience - that so many skin conditions and other issues go misdiagnosed (or undiagnosed!) all the time. Baby Deals With Awful Skin Issue 
I STILL have a skin issue that no one knows what to do about it, including the specialists I've seen...and nor do they care to try and figure out what triggers these random episodes ("it's all in your head, reduce your stress") - and they STILL tell me "it had nothing to do with your allergy testing..." Really? Because I never had non-raised red spots, hives, rashes OR burning hives with pain in my skin at random times with zero warning until directly AFTER I had allergy testing done.
The only thing we have found after 6 years of LOTS of research and excruciating trial and error, is that the issue always crops up:
In extreme heat,
When I am exposed to chemicals without wearing protection (like bug spray, cleaning items, solvents, etc...),
Use of pain killers (I can never have ibuprofen or naproxen related products again - that reaction lost me my wedding ring and left permanent damage on my chest),
After eating foods with pesticides on or in them (lips swell, skin breaks out, headaches ensue...though this never happens with the same items in organic form.
So this is one BIG reason I am as non-GMO and organic as possible - that has drastically changed my skin allergy issue just paying attention to these issues alone.
I will always be cautious and make sure I always get second and third opinions from varying fields of expertise after ANY diagnoses. I've been burned one too many times over flippant attitudes, brush-offs, and condescending behavior making me out to be over-sensitive.
Excuse me, you live with never knowing what will trigger a skin issue that you NEVER want to be up in front of a crowd speaking with! Or not being able to sleep because you have to wait for the pain and reaction to subside. Or, this is a doozie...have a doctor refuse to prescribe you an EpiPen because he believes it's "all in your head, and if you reduce your stress it won't happen anymore"...Really? I beg to differ.
My all-time favorite "what the ?" Moment though: I'm in an ER with a massive breakout all over (this one had red round spots under the skin (they were not raised) and were hot to the touch. No itching, no platelets. I had 4 docs come through, and ALL of them had to thumb through PICTURES in some large medical book and finally could come to no conclusion as to what my issue was. "We'll call it urticaria...that's about all we can tell you"...No kidding...really? I KNEW THAT. Now, tell me how to eliminate it!


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